Useful Links

 

Batten Disease Family Association www.bdfa-uk.org.uk

US Batten Disease Support and Research Association

www.bdsra.org
Bee for Battens (Ireland) www.BeeForBattens.org
Beat Batten (Netherlands) www.beatbatten.com
ContactpuntNCL (Belgium) www.contactpuntncl.be
NCL Stiftung (Germany) www.ncl-foundation.com
Norwegian NCL Family Association www.nsvf.org
Asociación Española de Familias afectadas por Lipofuscinosis (Spain) www.aefal.org
 

Beyond Batten Disease Foundation (USA) www.beyondbatten.org
Danish NCL Family Association www.dsvf.dk
NCL-Naechstenliebe (Germany) www.ncl-naechstenliebe.de
NCL Gruppe (Germany) www.ncl-deutschland.de
"Life" Association against child rare illness (Serbia) www.zivotorg.org
Noah's Hope (USA) www.noahshope.com
   
   
   
Royal Holloway University of London www.rhul.ac.uk
Royal Holloway Conference Centre www.conferences.rhul.ac.uk
 

Royal Holloway Disabled Access PDF Document
   
 

Transport for London www.tfl.gov.uk/gettingaround
     
NCL Resource Gateway
(Dr Sara Mole, UCL)
http://www.ucl.ac.uk/ncl
Pediatric Storage Disorders Lab
(Dr Jonathan Cooper, KCL)
http://neuroscience.iop.kcl.ac.uk/psdl